Center to Improve Veteran Involvement in Care (CIVIC)
Jennifer L. Barton, MD, MCR is the Rheumatology Section Chief at the VA Portland Health Care System and Associate Professor of Medicine at Oregon Health & Science University. Her research focuses on patient-clinician communication, shared decision making, and the rheumatic diseases. She is also co-lead of the VISN 20 VA Rheumatology ECHO which began in 2019.
Dr. Barton has received a K23 award from the NIH to examine patient-clinician goal concordance in rheumatoid arthritis. Dr. Barton completed fellowship at University of California, San Francisco, and was an assistant professor at UCSF, where she received a career development award from the American College of Rheumatology to study patient-physician discordance around assessment of disease severity in rheumatoid arthritis, and led the development of a low literacy medication summary guide and decision aid tool for vulnerable populations with RA.
Dr. Barton is currently a co-investigator on three CIVIC projects: "Listening to Gulf War Veterans: A Qualitative Inquiry into the Health Experience and Treatment of those with Chronic Multisymptom Illness" (VA HSR&D grant I01 HX002148-01A@; PI: Helfand); "Patient-Centered Decision Support for Veterans Making Choices About Where to Get Their Health Care: 'Should I Stay or Should I Go?'" (VA HSR&D Research to Impact for Veterans grant; PI: Slatore); and "Adapting Caring Contacts to Counteract Adverse Effects of Social Distancing during COVID-19" (HSR&D grant C19 20-216; PI: Teo).
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT) (Consultant)
Principal Investigator: Schmajuk
Grant ID: R01 HS025405
STOPGout: Comparative Effectiveness in Gout: Allopurinol v. Febuxostat (Sub-Investigator for VA Portland HCS)
Principal Investigator: O'Dell
Grant ID: CSP#594
Listening to Gulf War Veterans: A Qualitative Inquiry into the Health Experience and Treatment of those with Chronic Multisymptom Illness (Co-Investigator)
Principal Investigator: Mark Helfand
Grant ID: I01 HX002148-01A2
RA Choice 2.0: Update and digitization of a tool to facilitate shared decision making in rheumatoid arthritis (Prinicpal Investigator)
Grant ID: Gerlinger Award
Patient-Centered Decision Support for Veterans Making Choices About Where to Get Their Health Care: "Should I Stay or Should I Go?" (Co-PI)
Principal Investigator: Christopher Slatore
Grant ID: HSR&D Research to Impact for Veterans
You can find a full list of publications at PubMed.
- Liu LH, Garrett SB, Li J, Ragouzeos D, Berrean B, Dohan D, Katz PP, Barton JL, Yazdany J, Schmajuk G. Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis [published online ahead of print, 2020 Apr 9]. Health Expect. PMID: 32270591
- Decary S, Barton JL, Proulx L, et al. How to Effectively Support Patients with Rheumatic Conditions Now and Beyond COVID-19 [published online ahead of print, 2020 May 13]. ACR Open Rheumatol. 2020;10.1002/acr2.11152.
- Barton JL, Decary S. New galaxies in the universe of shared decision-making and rheumatoid arthritis. Curr Opin Rheumatol. 2020 May;32(3):273-278. PubMed PMID: 32141955.
- Matsumoto RA, England BR, Mastarone G, Richards JS, Chang E, Wood PR, Barton JL. Rheumatology Clinicians' Perceptions of Telerheumatology Within the Veterans Health Administration: A National Survey Study. Mil Med. 2020 Aug 13;. doi: 10.1093/milmed/usaa203. [Epub ahead of print] PubMed PMID: 32789463.
- Desilet LW, England BR, Michaud K, Barton JL, Mikuls TR, Baker JF. Posttraumatic Stress Disorder, Depression, Anxiety, and Persistence of Methotrexate and TNF Inhibitors in Patients with Rheumatoid Arthritis. ACR Open Rheumatol. 2020 Sep 13;. doi: 10.1002/acr2.11175. [Epub ahead of print] PubMed PMID: 32921004.
- Singh JA, Richards JS, Chang E, Toupin-April K, Barton JL. Shared decision-making in gout treatment: a national study of rheumatology provider opinion and practice. Clin Rheumatol. 2020 Sep 30;. doi: 10.1007/s10067-020-05421-9. [Epub ahead of print] PubMed PMID: 32997317.
- Barton JL, Kunneman M, Hargraves I, LeBlanc A, Brito JP, Scholl I, Montori VM. Envisioning Shared Decision Making: A Reflection for the Next Decade. MDM Policy & Practice. In press.
Shannon Nugent, PhD is a core investigator at the VA Portland Healthcare System, Center to Improve Veteran Involvement in Care (CIVIC) and an Assistant Professor at Oregon Health and Science University in the Department of Psychiatry. Dr. Nugent's research interests are in the areas of palliative medicine, psychosocial oncology, chronic pain, evidence synthesis, and improving access to health care for older adults. She is in her second year of a five-year Mentored Research Scholar Grant from the American Cancer Society, "Survivors of Head and Neck Cancer: Optimizing Pain Management." In addition, she is a co-investigator on a VA HSR&D study that aims to qualitatively describe the health experiences of Gulf War Era Veterans. She completed her PhD in Clinical Health Psychology from the University of Colorao Denver in 2015 and completed a two-year health services research fellowship with CIVIC in 2018.
You can contact Shannon Nugent by email at Shannon.Nugent@va.gov.
Listening to Gulf War Era Veterans: A Qualitative Inquiry into the Health Experiences of Veterans with Chronic Multisymptom Illness (Co-Investigator)
Principal Investigator: Mark Helfand
Grant ID: SDR 17-151
Impact of the COVID-19 Pandemic on Patient-Clinician Relationships and the Well-Being of Frontline Clinicians: A Qualitative Study (Co-PI)
Principal Investigator: Shannon Nugent & Kelly Vranas
Grant ID: Local Pilot Funding
You can find a full list of publications at PubMed.
- Kondo K., Morasco BJ, Nugent SM, Ayers C, O’Neil ME, Freeman M, Paynter R, & Kansagara D. (2020). Pharmacotherapy for the treatment of cannabis use disorder: a systematic review. Annals of Internal Medicine, 172(6), pp.398-412.
- Nugent SM, Meghani S, Rogal S, & Merlin J. (2020) Cannabis use among individuals with cancer: An unresolved and timely issue. Cancer, 126 (9), 1832-1836.
- Nugent SM, Golden S, Hooker E, Sullivan D, Thomas C, Deffebach M, Sukumar M, Schipper P, Tieu P, Moghanaki D, Wisnivesky J, Samson P, Robinson C, Slatore C. (2020). Longitudinal Health-Related Quality of Life among Individuals Considering Treatment for Stage I Non-Small Cell Lung Cancer. Annals of American Thoracic Society, 17 (8) 988-997.
- Nugent SM, Freeman M, Ayers CK, Winchell KA, Press A, O’Neil ME, Kansagara D. Gulf War Illness – A Systematic Review of Therapeutic Interventions and Management Strategies. In press, Military Medicine.
Donald Sullivan, MD, MA, MCR is an Associate Professor and Associate Fellowship Program Director in the Department of Medicine, Division of Pulmonary and Critical Care Medicine at Oregon Health and Science University. He received his M.D. from the University of Arizona, and completed residency at the University of Maryland and fellowship at OHSU. His primary research focus is on improving the quality of palliative and end-of-life care among patients with serious illness. Dr. Sullivan is also interested in enhancing comprehensive cancer care among persons diagnosed with lung cancer. Specifically, he is interested in improving patients' and families' outcomes and experiences through advances in the delivery of care as well as patient participation in treatment decision making. He has methodological expertise in mixed-methods, qualitative, and population-based database research. Dr. Sullivan is or has been funded by the National Institutes of Health- National Cancer Institute and National Institute on Aging, American Thoracic Society, American Lung Association, Borchard Foundation, Knight Cancer Institute, Medical Research Foundation, and UPENN Roybal Center. Dr. Sullivan also enjoys providing clinical research mentorship to medical students, residents, fellows, and post-doctoral candidates at OHSU and CIVIC. Dr. Sullivan teaches pulmonary medicine at the OHSU School of Medicine and within the Department of Medicine at OHSU. Clinically, he provides pulmonary and critical care medical services at OHSU.
You can contact Donald Sullivan by email at Donald.Sullivan3@va.gov or at firstname.lastname@example.org.
Promoting Advance Care Planning Using a Prognosis and Outcome Information Sheet among Persons with Advanced Dementia in Long Term Services and Support Facilities (Principal Investigator)
The goal of this mixed-methods study is to develop, refine, and pilot test an advance care planning intervention among families of persons with advanced dementia.
Grant ID: NIH-NIA P30AG064105
Impact of Specialist Palliative Care on Outcomes in Advanced Stage Lung Cancer (Principal Investigator)
The goal of this study is to determine the impact of palliative care on mortality, healthcare utilization and patient-centered outcomes among advanced stage lung cancer patients in a national healthcare system.
Grant ID: NIH-NCI 1K07CA190706-01A1
A Lung Cancer Treatment Conversation Tool (Principal Investigator)
The goal of this study is to conduct a trial of a computer-based lung cancer treatment conversation tool to engage patients in shared decision making to improve patient-centered outcomes.
Grant ID: ATS Foundation/American Lung Association
Improving Decision Making in Lung Cancer: A Low-Literacy Conversation Tool (Principal Investigator)
The goal of this study is to develop and pilot-test a low-literacy lung cancer treatment conversation tool to engage patients in shared decision making to improve health and decisional outcomes.
Grant ID: MRF-New Investigator Award
Invasive and Non-Invasive Mechanical Ventilation Outcomes in Advancd Dementia (Co-Investigator)
The goal of this study is to determine the use and outcomes of different types of ventilation among advanced dementia patients in a national database.
Principal Investigator: Teno
Grant ID: NIH NIA 1R56AG063748-01
Hospital-level variation in ICU admitting patterns among patients presenting to the emergency department: a mixed-methods approach (Mentor/Co-Investigator)
The goal of this study is to examine variability of ICU utlization among hospitals within the VA Healthcare System for patients to determine aspects of healthcare delivery.
Principal Investigator: Kelly Vranas
Grant ID: NIH NHLBI K12
Palliative Care Interventions for Outpatients Newly Diagnosed with Lung Cancer: Phase II (Co-Investigator)
The purpose of this randomized control trial is to test the efficacy of delivering a nurse-led telephone-based intervention with early provision of palliative care to improve patient-centered outcomes for Veterans with newly diagnosed lung cancer.
Principal Investigator: Reinke
Grant ID: VA Nursing Research NRI 15-456
You can find a full list of publications at his bibliography.
- Medysky ME, Dieckmann NF, Winters-Stone KM, Sullivan DR, Lyons KS. Trajectories of Self-reported Physical Functioning and Symptoms in Lung Cancer Survivors. Cancer Nurs. 2020 Jan 31. PMID: 32022778
- Sullivan DR, Slatore CG. Association of Early Palliative Care With Survival in Patients With Advanced Lung Cancer—Reply. JAMA Oncol. 2020 Jan 16. PMID: 31944220
- Vranas KC, Ouyang D, Lin AL, Slatore CG, Sullivan DR, Kerlin MP, Liu KD, Baron RM, Calfee CS, Ware LB, Halpern SD, Matthay MA, Herridge M, Mehta S, Rogers AJ. Gender Differences in Authorship of Critical Care Literature. Am J Respir Crit Care Med. 2020 Apr 1;201(7):840-847. PMID: 31968182
- Vranas KC, Scott JY, Badawi O, Harhay MO, Slatore CG, Sullivan DR, Kerlin MP. The Association of ICU Acuity with Adherence to Evidence-Based Practices. Chest. 2020 Mar 27:S0012-3692(20)30544-4. PMID: 32229228
- Lee RY, Brumback LC, Sathitratanacheewin A, Lober WB, Modes ME, Lynch YT, Ambrose CI, Sibley J, Vranas KC, Sullivan DR, Engelberg RA, Curtis JR, Kross EK. Association of Physician Orders for Life-Sustaining Treatment with ICU Admission among Patients Hospitalized Near the End of Life. JAMA. 2020, 16;323(10):950-960. PMID: 32062674 PMCID: PMC7042829
- Sahni N, Tourani R, Sullivan D, Simon G. min-SIA: A Lightweight Algorithm to Predict the Risk of 6-Month Mortality at the Time of Hospital Admission. J Gen Intern Med J. 2020 May;35(5):1413-1418. PMID: 32157649 PMCID: PMC7210334
- Nugent SM, Golden SE, Sullivan DR, Thomas CR, Deffebach ME, Sukumar, Schipper PH, Tieu BH, Moghanaki D, Wisnivesky J, Samson P, Robinson C, Slatore CG. Longitudinal Health-Related Quality of Life among Individuals Considering Treatment for Stage I Non-Small Cell Lung Cancer. Ann Am Thorac Soc. 2020 May 20. PMID: 32433897
- Vranas KC Lapidus JA, Ganzini L, Slatore CG, Sullivan DR. Association of Palliative Care Use and Setting with Healthcare Utilization and Quality of Care at the End of Life Among Patients with Advanced Lung Cancer. Chest 2020. Jun 23:S0012-3692(20)31721-9. PMID: 32589949
- Sharm R, Gonzalo P, Dawn H, Sullivan DR, Teno JM. The Black and White of Invasive Mechanical Ventilation in Advanced Dementia. J Am Geriatr Soc (in press)
- Sullivan DR and Curtis JR. A View from the Frontline: Palliative and Ethical Considerations of the COVID-19 Pandemic. J Palliat Med (in press)
- Sullivan DR, Kim H, Gozalo P, Bunker J, Teno JM. Trends in Non-Invasive and Invasive Mechanical Ventilation among Medicare Beneficiaries at the End of Life. JAMA-IM (in press)
- Gutiontov SI, Golden DW, Gunderson L, McCloskey S, Shumway D, Sullivan DR, Wall T, Jagsi R. Informed Consent in Radiation Oncology. Int J Radiat Oncol Biol Phys (in press)